It happens. So many nights of disturbed sleep. Constant watching and supporting. Tiredness and exhaustion. Emotionally drained. A spent force. Unable to see beyond the relentless need for my presence. As a parent of a special needs child, – no longer a child, but a young adult with greater needs that increasing age brings –Continue reading “Loss …”
Category Archives: A day in the life …
Into the sunlight …
Winter. It can be a long, dark season. Health challenges can be the same. We spend long months dealing with the challenging consequences of serious illness. Many times giving into despair, wondering what the future will hold. Even, will there be a future. And yet, as surely as winter eventually gives way to spring, theContinue reading “Into the sunlight …”
A hand to hold …
Over the years, I have come to understand that when a person is born with autism, they view the world as God intended. Colours, sound, movement and the interaction with life. It is classed it as neurodiversity, which is a convenient label for those who do not see the world as those who are neurotypical.Continue reading “A hand to hold …”
Torment …
Epilepsy. The day our son was born, he convulsed continually. Virtually every day since, he has suffered from seizures that medication can not ease. From the day he was born we have been told repeatedly that he will not survive. Initially, beyond that first night, and then on several occasions since as his health hasContinue reading “Torment …”
Already! …
The thud of mail landing on the doormat signal another late delivery. 4:15pm! long gone are the days when mail would arrive early in the morning, often before I left to work (when I was working) and another second delivery around lunchtime. No, today at best, we can expect only one delivery and due toContinue reading “Already! …”
Through the window …
I think back to my own childhood and the children’s program, ‘Playschool’. In that program a look through a window revealed a world of awareness and education. “Today, we will look through the …. square window” the presenters would say. It could have been square, round or arched window, and as children, we would tryContinue reading “Through the window …”
Regrets …
How was it sung? Oh yes, “Regrets, I’ve had a few, but then again, too few to mention. I did what I had to do, and saw it through without exemption. I planned each chartered course, each careful step along the byway, but more, much more than this …. I did it my way!” ItContinue reading “Regrets …”
The April Showers …
Throughout March, and into April, we have recognised and shared awareness – together, hopefully, with some acceptance = of the conditions of Hydrocephalus, Epilepsy and Autism. Each one, we have first hand experience of and what it takes to support somebody with a complex mix of these and other disabilities. Through supporting our son, weContinue reading “The April Showers …”
Wintery Showers …
No one in their right mind should be outdoors gardening when the weather is like it is. Temperatures down to no more than +2C and a northerly wind adding to the chill factor. Sunshine suddenly sweeping across the garden, followed by heavy hail showers and freezing rain. Just enough time to walk swiftly around ourContinue reading “Wintery Showers …”
A Gardener’s Diary – 1st Feb
It’s my own fault. Who in their right mind would try and rake up leaves as the wind blows? The sun was shining this morning. The temperature is a balmy +11C and significantly higher than it has been of late. My enthusiasm to get out into the garden made me overlook some basic’s such asContinue reading “A Gardener’s Diary – 1st Feb”
The Resilient Gardener ... 